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CaringBridge Aug. 12
Laura Bacon September 17, 2013
 
Thankful Thursday ...

Written August 16, 2012 2:29pm
 

Thank you to all who sent words of encouragement in response to my blog yesterday … they were much appreciated. My back pain was not as bad yesterday as it had been the past several days, so I did not take any pain medication. The pain is roughly the same today as yesterday. A wise friend sent me an email with a very good perspective on why I should take oxycodone. I definitely see his point, so I decided to take one pill this morning.  I’ll take additional pills throughout the day as needed … we’ll see how it goes. It definitely would be nice to be comfortable and to get my mind off pain and on to more important and productive topics. I was able to do that to some extent yesterday and got quite a bit of work done, but it definitely would be easier if I were pain-free.
 

Today’s high temperature is only supposed to be 100 degrees, with isolated thunderstorms. Quite a bit cooler than the 115-degree days we have had recently. We had significant cloud cover again today for our outdoor exercise routines, although the humidity was in the 45% range, so it was a bit damp. (I would welcome slightly higher temperatures and significantly lower humidity, although this is the time of the year – monsoon season – when we just can’t boast about a dry heat.) Cathy walked part-way with me and then went on a run. Thus, we didn’t quite have enough time to settle all the world’s problems (or even just the university’s problems), although we certainly tried … maybe tomorrow.
 

I am on campus today. Among other things, I plan to meet with my Ph.D. student to discuss her progress and talk about experiments we will be conducting this fall in the lab. I also hope to meet a new faculty member that we hired recently. I managed to make it to her job talk last spring, but that was when I was anemic and thus didn’t stay around long enough to meet her afterwards. Probably just as well … I might have frightened her away!
 

I am struck again by how fortunate I am to be able to work at home, and to have the flexible and understanding colleagues I have. It is great to come to the university, and I certainly hope to do that frequently this fall, but it is comforting to know that I can work at home when I’m not feeling all that well. This fall and early spring I probably also will want to work at home when I am hooked-up to a portable pump that will be delivering one of my chemo drugs continuously for about 48 hours.
 

When I look back on my career, I have absolutely no second thoughts regarding my choice to be in academia. It has been a real blessing. Not only does it provide a certain degree of flexibility, but I have met so many smart, dedicated, and wonderful people.  And I have found working with students to be an absolute delight. I learn more from them than they from me, no doubt about it.
 

I am excited to be traveling soon to visit my parents in Kansas. I haven’t seen them for about a year. This month of not having chemo seemed like an opportune time to visit. Cathy and I will be gone for about three days. Consequently, I will not be writing another journal entry until next Tuesday. So, you get a break!
 

In the meantime, I hope you all have a wonderful weekend. And thanks again for your continued support.


 

Laura Bacon September 17, 2013
 
Tests on Tuesday ...

Written August 21, 2012 12:09pm
 

Cathy and I had a nice trip to Kansas to visit my parents. Although Kansas suffered through some pretty hot days this summer, the weather while we were there was perfect: highs in the low- to mid-80s and lows in the 50s. Cathy and I were almost cold when we were exercising in the mornings. What a treat!  (We, by the way, were nowhere near cold when we walked in Phoenix this morning!)

 

Unfortunately, I was experiencing pain the whole time we were in Kansas. Indeed, the pain I mentioned last week has not subsided and is not mitigated much by taking pain medication (oxycodone). If anything, the pain has gotten worse lately. It could be related to the ulcer, although it could be related to my tumors. I communicated yesterday with my GI specialist (who currently is in Europe, but who wrote back several times with various thoughts about what might be happening) and some of my caregivers at Piper. The latter decided to bring me in today for some blood work (including the tumor marker CA19-9) and a CT scan. These already were scheduled for Friday, but they didn’t want to wait that long. If the tumors are active again, I suppose there is some possibility that we’ll start chemo sooner than scheduled (we are scheduled to start next Monday the 27th). This all has me quite anxious. And, of course, it is quite challenging to be in constant pain. One possible outcome of today’s visit (besides the test results) is that we’ll increase the strength of my pain patch.  I’ll know pretty soon. Right now I am waiting to see the nurse practitioner, who will make that call.

 

I hope to know the results of both the tumor marker and CT scan by tomorrow, possibly before I write my journal entry. In the meantime, I need to focus on positive things and try to keep my hope and optimism high. It is seemingly the only thing in my control.

 

Thanks for your support through all of this.


 

Laura Bacon September 17, 2013
 
Wonderful News ...

Written August 22, 2012 12:28pm
 

My Ca19-9 (tumor marker) score moved downward from 18.8 last month to 16 yesterday … anything below 30 is normal. I don’t know if my two most recent values are significantly different from one another, but what is significant is that the tumor is still inactive.  What a relief.  What a big relief! We are very happy. (To underscore the kind of care I am getting … I felt as if the nurse who called me with the results was just as relieved as I was! At Piper, they really care about their patients and are quick to do whatever they can to give the best care possible. I am so very fortunate!) 
 

I am still waiting to hear the results of the CT scan, but I would be surprised if there were anything bad in those results, given that the tumor is still effectively turned off.  
 

It would appear, therefore, that the back and stomach pain I have been experiencing lately is due to the ulcer. The folks at Piper will be working closely with my GI specialist at Mayo to address the problem. In the meantime, we are addressing the pain by increasing the dosage of medication coming from the pain patch and supplementing as needed with oxycodone. We put a new patch on last night, and I have been taking oxycodone about every two hours. I am hoping to cut back on that once I have been able to reduce the pain significantly.  We are well on our way to managing the pain! It will be great to have the pain under control in general, of course, and in particular it will be nice to be feeling as strong and comfortable as possible as we move into this next chemo regimen on Monday.
 

When I was at Piper yesterday, we talked a bit about what to expect in terms of side effects from the new chemo treatment (a cocktail of four chemo drugs). About the only side effect that is common across patients (besides, I suppose, hair loss) is fatigue (ok, so I’ll need to take another nap … no big deal!). There are less pleasant side effects that are very patient-dependent. I’m optimistic that I won’t have much trouble with those, and I don’t expect the fatigue to be too bad, given that I am feeling strong and am in pretty good shape, at least for a cancer patient ... But we’ll soon see. On the one hand, I’m not looking forward to starting the new regimen, although that largely reflects the fact that I am facing the unknown. On the other hand, I am ready to get started, because I expect this treatment to be very effective and I am ready to fight this cancer even harder than we have been thus far.
 

I am convinced that the wonderful medical treatment I am receiving is only one of many prongs in our fight against advanced pancreatic cancer.  I would not be where I am today without that treatment. Likewise, I attribute my success thus far in part to the love and support from friends and family, to many good thoughts and prayers, and to the positive attitude that Cathy and I try to have each and every day. Team Bacon is arguably a force to reckon with.
 

So … we’ll ratchet up the toxicity of the chemo treatments and we’ll continue with the many things that the team can do, and together we’ll fight this nasty disease. And we’ll win.


 

Laura Bacon September 17, 2013
 
More good news ...

Written August 23, 2012 12:17pm
 

The results from the CT scan showed that everything is stable … not much has changed since the last scan, about two months ago. Although I did not expect the scan to show anything bad (given the Ca19-9 results), it is always good to have that hunch confirmed. It is likely that the pain I have been experiencing is due to the ulcer; in fact, one hypothesis is that the pain is the result of the ulcer pressing against the nearby metal stent that I had inserted back in February, to allow food to pass through my stomach. We can’t move or remove the stent, so we’ll just need to be patient while I am healing. I’m not sure if we’ll try some additional medicine to help that healing process, or just continue as we have been. In any event, I am optimistic that we’ll manage the pain better and better and that ultimately the pain from the ulcer will go away. In the meantime, it is a lot easier dealing with this pain when I know it is not caused by an aggressive tumor … Pain, without the anxiety.
 

Cathy and I went on a nearly one-hour walk this morning. It has been much cooler in the mornings lately. Today it was in the mid 70s, although the humidity was about 80%, so it was pretty muggy. Nevertheless, it was a great walk. Unfortunately, Cathy hurt her hip a week or so ago, so she hasn’t been able to run lately. I think it is nearly healed, though, so perhaps she’ll run a bit tomorrow. While she has been injured, she has been walking the entire routes with me … a silver lining, at least for me!
 

Classes start at the university today. Cathy is teaching one undergraduate class (with a current enrollment of 101 students), which meets in the late afternoon on Tuesday and Thursday. I used to teach a year-long undergraduate seminar that I developed when I was department chair, but we (the current department chair and I) decided that someone else should teach it this year. I plan to teach it again next year. I won’t be teaching anything this year, but I hope to contribute to the department in other ways, whenever I can. Once again, I am so lucky to be working in an environment with so much flexibility and understanding. It takes a lot of pressure off of me, allowing me to focus on healing.
 

I do have a PhD student who is currently defining her dissertation research. I am meeting with her later today to talk about two possible topics and associated experiments. With good fortune, she’ll be able to finish her dissertation within a year or so. I hope I am able to provide her as much assistance and guidance as she needs. For the next six months, I probably will be available remotely, from home, the week of chemo, but I hope to be available to meet with her at the university on my “off weeks” (this chemo regimen is one week on, one week off …).
 

Right now it is a little hard to plan our lives for the next six months. We’ll get some clarity soon, however, once we start the new chemo regimen. I realize that these new drugs are likely to be harder to deal with, but I am optimistic that I’ll do well and that the chemo will not impact our lives too negatively. We’ll certainly know soon enough. What I do know now, however, is that Cathy and I will get through this, just like we have gotten through everything else. And we’ll continue to rely upon Team Bacon to give us support. We couldn’t do it without you.


 

Laura Bacon September 17, 2013
 
Living with pain ... for now ...

Written August 24, 2012 12:42pm
 

I am still working to get the pain under control. Pain management sure is tricky. I’ve had a higher-dose patch on for about three days now, and am taking oxycodone somewhat regularly. I haven’t been able to get rid of the pain all together; indeed, the pain level fluctuates from mild to moderate. It certainly helps to know that it is not due to an active tumor, but I sure would like to get it under control. I know it takes time … I’ll try to be patient.
 

Cathy went on a run this morning. She said her hip felt fine, so that is good. I skipped my walk (very unusual) because I was feeling nauseous after taking a couple oxycodone. I’m feeling better now.
 

We’ve been getting quite a bit of rain lately. It is always nice to get rain in the desert, especially since we have been in a drought lately. I hope to feel well enough to do a little yard work this weekend, particularly if it is not too hot. I feel like I should get a few things done before I start chemo again, just in case I don’t have enough energy to work in the yard once I am on the new regimen.
 

Cathy and I plan to be at Piper by about 6:30 on Monday morning. They will do some blood work to make sure that my body is ready for chemo (it certainly should be), and then we’ll start the show. I’m not really sure what all to expect, although I think we’ll be there until mid afternoon. Once we are done at Piper, they will send me home with a pump that will deliver one of the chemo drugs for about two days; we’ll go back on Wednesday to have them disconnect the pump … A new adventure, to be sure.
 

I will take my laptop to Piper on Monday in hopes that I will have the opportunity to post my journal entry while I am there. If I don’t get it done while I am at Piper, I may not get it done at all … it will depend upon how much energy I have once I get back home. So, if you don’t hear from me on Monday, you’ll know that I was too busy at Piper and too tired at home.
 

I hope you all have a great weekend. Thanks for your support.


 


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