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CaringBridge Dec. 12
Laura Bacon September 17, 2013
 
Here we go again ...

Written December 3, 2012 12:21pm
 

I hope you all had a wonderful weekend. Cathy and I had a nice and productive one. On Saturday Cathy decorated and cleaned the house (did laundry, took care of me, etc.) … it definitely looks like Christmas at our house. Cathy and I put electric luminaries along our (flat) roof line. It was about all I could do to get the luminaries positioned and ready for Cathy to tape them down. The heat and fatigue got to me, so I had to call it quits after awhile. I wasn’t feeling well at all. Fortunately, “we” got them finished, and they look nice, if I do say so myself.


Sunday brought more work and preparation for Christmas. While Cathy and I were on our walk on Sunday, our friends Mary and John called and offered to help with any decorating we had to do. It was an incredibly kind offer. Ironically, their call came right while I was lamenting the fact that I just can’t do what I used to do. It hurts and is incredibly frustrating to be in this position, but I have to believe that it is temporary and that once we finish the radiation therapy I will start feeling better again. In any event, I have to accept where I am in terms of recovery, so we gladly took Mary and John up on their offer. They came over late in the afternoon and helped Cathy put lights out along our back wall in our back yard. Those, too, look good, and it is so great to have all that work done. On top of helping us with decorating, they made and brought dinner for us. What great friends and Good Samaritans they are. 


I struggled throughout the weekend with nausea and fatigue. The fatigue isn’t so bad … I just need to sleep … but the nausea and vomiting is tough. I am afraid that I have lost weight since last week. I am doing my best to eat multiple small meals … I just wish I were doing better.


We are getting ready for some pre-Christmas company. Cathy’s sister Mary is coming later this week (we think); my sister Su is coming on Sunday; and then Cathy’s brother Paul and his wife Carter are coming the week of the 17th for a few days. We’ll probably get our Christmas tree while Mary or Su is here.


As for company at Christmas … Dan and Liz will be coming home around the 22nd. We’ll no doubt need to share them with Liz’s parents, but we’ll get to see them quite often over the holidays, and we certainly look forward to that. We hope that Laura will have plenty of time off from work to join us for the festivities. It is always nice to have her around. It is probably easier for me if the number of people at our house is not too high. Crowds can be fun, but they are probably more stressful than I need right now.


I have been getting offers from friends to give me rides to Piper for my radiation therapy, given that Cathy cannot always take me five days a week. We are so fortunate to have such good friends … it means so much to us to have that help. 


Others who are not available to take me to Piper are helping in other ways. There have been so many acts of kindness throughout this past year; it is simply overwhelming. Certainly your thoughts and prayers mean so much to us. Indeed, we are so grateful for all you are doing to help us through this difficult struggle. We could not fight this fight without you! Thank you for all your help.


 
Laura Bacon September 17, 2013
 
Fighting through radiation ...

Written December 4, 2012 10:40am
 

I am down to just seven more radiation treatments (including today’s), unless they give me a “boost”, which could be up to three more treatments at a higher dose.  We’ll talk with the radiation oncologist next Monday to determine whether we have the boost or not.  Right now, I vote “not”.  Of course, it just depends on how helpful the boost might be. I can endure even more if it means successful results, such as an even greater reduction in the size of the tumor. Of course, we don’t know that there has been a reduction in my tumor, but I am thinking there has been.  And we won’t have any objective data on Monday to say how effective the treatment has been.  One thing that makes me believe it has been effective is that my back pain is essentially gone.
 

A patient at Piper re-introduced himself to us yesterday.  He started chemotherapy treatment after I did, and his goal at the beginning of treatment was to be doing as well as I was doing.  Right now he is doing better than I am! I told him that things have reversed – I want to be doing as well as he is doing.  I told him I’d get there, but that I just need to get over a bump or two first.
 

One thing that helps me get better emotionally and physically is the nice long walks I take with Cathy in the morning.  We went on one today, and to my delight Cathy walked the entire distance with me (she skipped a run today). We didn’t walk all that far or all that fast, but it was a pleasant walk filled with pleasant conversation. I feel close to her on these walks … she is so supportive.
 

After the walk I had a bowl of oatmeal.  It tasted good and so far it is staying in my stomach.  That is a real accomplishment these days. I may have some oatmeal for lunch as well.  I need to find foods that taste good and stay in my stomach. I need to at least maintain my weight, which I’m not doing.  I am losing about a pound a week. It would be worse without the TPN, which gives me important nutrients and calories.  Although it is a bit of work to hook me up in the evenings, it is definitely worth it, as I would be losing considerably more weight without the TPN. I am so glad the Piper group is looking out after me.  They are so caring.
 

I feel so fortunate to have so many caring people looking out after me, including members of Team Bacon. Thank you so much for all your support!


 

Laura Bacon September 17, 2013
 
Keep on fighting ...

Written December 5, 2012 11:30am
 

Cathy and I went on a nice walk this morning. It was a bit chilly, but I can’t complain. The weather was nearly perfect. And, of course, the company was.


I had a pretty good day yesterday; I was able to keep all my food down. Unfortunately, I can’t say the same for today. The radiation is tough, and of course it is my stomach that is getting hit, and hit hard. I can’t wait until we are done with the radiation therapy.


We had been wondering if I could extend the replacement of my pain patches from 48 to 60 hours. We forgot to replace them last night (at 48 hours), and instead replaced them this morning (at 60 hours). Unfortunately, I have a bit of pain in my back, so I guess we know I’m not ready to extend the replacement beyond 48 hours. Good to know, but I wish I didn’t have the back pain to prove it. Fortunately, the pain isn’t severe and I don’t think it will linger long.


Our friend Larry took me to Piper yesterday. Our neighbor Judy is taking me there today. I just don’t know what we would do without that help. Cathy takes me most of the time, but understandably there are days when she just can’t fit it into her schedule.


Cathy and I are so appreciative of all the help and support we receive. We have to keep fighting this disease. And it is much better to fight as a team. Thanks for all your support in this fight!


 
Laura Bacon September 17, 2013
 
We keep on fighting ...

Written December 6, 2012 11:39am
 

Although I didn’t feel all that well yesterday during the day, I was able to eat dinner last night and keep it down.   A triumph, to be sure (we celebrate the smallest of achievements …). I also had a big bowl of oatmeal this morning, and feel pretty good.  I am optimistic that this will be a good day, and I am certainly very thankful for that. It definitely makes it a lot easier to work on professional things when I am feeling well. Indeed, it makes it a lot easier simply to make it through the day when I am feeling well!
 

Cathy’s sister Mary arrived at our house about 6:00 last night.  It is a long (9-hour) drive from San Luis Obispo, CA, but she didn’t seem too tired from the drive.  It is great to have her here, as always.  She’ll be here until Saturday, so we’ll have to make the most of her days here. 
 

Cathy and I had a nice walk this morning.  It was a bit chilly (for us Phoenicians …), but that simply resulted in a faster pace … I was trying to stay warm, as I don’t have much meat on my bones! It was nice to get caught up on Cathy’s day yesterday, including the faculty meeting. I miss a lot when I only work at home, but that is the easiest thing for me to do right now.  I am hopeful that I’ll be able to go in to work a few days per week this spring.  I am confident that I’ll feel better, so I think that is a realistic goal.
 

The little bit of back pain that I had yesterday is essentially gone, thank goodness.  All in all, I feel pretty good today.  I am very grateful for that.
 

We are doing a good job of fighting through the radiation treatments. I am so glad there aren’t that many treatments left. They certainly are more challenging than I had ever imagined. It is easier to fight through these treatments when I know I am not fighting alone.  I am grateful for your support; it makes the fighting that much easier.


 

Laura Bacon September 17, 2013
 
Counting down ...

Written December 7, 2012 11:28am
 

We are counting down the number of radiation treatments I have left to endure.  I believe today is the 22nd treatment.  I am likely to have 25 in total, which means I’d be done next Wednesday.  There is a chance that I’ll have to have about 3-5 more treatments. These extra treatments are called “boosts”, because they boost the power of the radiation.  I’m not especially keen on having the boosts, as I’m having enough trouble making it through the regular treatments.  I hope they take that into account. Moreover, one reason I would have the boosts is if the regular treatments did not affect my pain level. Fortunately, my pain has decreased during the course of these treatments, so perhaps they will be satisfied with the 25 treatments and call it quits.  We’ll take whatever they determine is necessary, but I certainly hope they determine that the boost treatments are not necessary. I’m anxious to be done with the radiation and move on to the chemotherapy regimen that was so successful for me previously.
 

We are enjoying having Cathy’s sister Mary around.  She and Cathy got our Christmas tree yesterday before Cathy took me to my radiation treatment. They also got some shopping done on that brief outing.  Laura picked me up at Piper after my treatment and brought me home.  Laura and Mary then went for a run in the desert.  Laura loves running in the desert behind our house, despite the fact that she has allergies that usually leave her sneezing and stopped up. Some days are better than others. Laura stayed at our house last night and is planning to stay again tonight. It often is the case that she stays with us when we have family visiting from out-of-town. It is a nice bonus for us. 
 

Cathy and I went for a nice walk in the desert this morning. We usually walk in the streets, but they were too shady this morning when we walked, and thus it was too cold to be walking in the streets, so we walked in the sunny desert. It was beautiful … and warm.
 

We are going to have lunch today with Cathy’s cousin Cathy. She lives in Scottsdale. It is always nice to see her. She has done so many nice things for us during the past year. Indeed so many people have done so many wonderful things for us.  It is truly overwhelming.  Cathy and I feel fortunate and blessed to have so much love and support. We can’t thank you enough for all you do for us, from your thoughts and prayers, your kind words of support, and the encouragement you give us that helps us fight our battle against cancer.  We know we are not fighting alone.


 


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