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CaringBridge Nov. 12
Laura Bacon September 17, 2013
 
TGIF …

Written November 15, 2012 7:00pm

 

I am going to be away from my computer most of the day tomorrow, and thus will not be able to post an entry.  Thus, I’d like to take this opportunity to wish you a fantastic Friday and wonderful weekend.   I will write more on Monday.


 

Laura Bacon September 17, 2013
 
A Thankful Week ...

Written November 19, 2012 12:32pm
 

As we prepare for Thanksgiving, Cathy and I are reminded of the many things we are grateful for.  This year we intend to expand the spirit of the holiday to the entire week.  We have just too much to be thankful for to limit the holiday to one day! Even a week doesn't do it.
 

This afternoon I have several appointments at Piper.  The first one is simply to draw blood for standard tests, including platelet and bilirubin counts. The second appointment is for radiation therapy. And then the third appointment is with my oncologist, to review the blood work and to discuss our next steps.  If the platelet count is sufficiently high and the bilirubin count is 1.8 or below (it was 2.0 last week), I most likely will receive one of the chemotherapy drugs today that I received as part of the first regimen that was so successful for me.  The purpose of the chemotherapy is to make the radiation more effective.I thus would be very grateful to receive chemotherapy today. I do not know how frequently I would receive it.  I should know considerably more later today …
 

We are looking forward to having family in town for Thanksgiving.  Dan and Liz will be arriving in Phoenix on Wednesday evening.  Our recently wed nephew Andy and his wife Kate will be arriving on Thursday. And Laura will most likely be staying with us during that time as well.  Although the number of guests at our dinner table may be smaller than in the past, the number of people staying with us will be larger.  The Thanksgiving celebrations will be great!
 

Cathy and I had a nice weekend; I certainly hope you did as well. Despite my high level of fatigue (caused, I believe, by the radiation), I was able to walk in the morning and to get out to run some errands with Cathy.  Although I wasn’t able to do as much as I might have liked, I am thankful for what I was able to do.
 

Cathy and I are so thankful for all of you.  Your love and support mean so much to us.  We are eternally grateful.


 

Laura Bacon September 17, 2013
 
Tough Tuesday ...

Written November 20, 2012 1:20pm
 

The blood work at Piper was excellent.  The platelet count was sufficiently high for chemo and the bilirubin count was down to 1.3, well within normal limits and thus sufficiently low for chemo.  My oncologist, however, decided against adding chemotherapy to the arsenal because the radiation is just too hard on me.  He felt that a combination of radiation and chemotherapy would be too much, and that I would likely have to stop radiation for awhile if we added the chemotherapy.  He also explained that the sensitization that we might get from the chemo is fairly small, so we are just going to stick with radiation.
 

I’ve been struggling with fatigue and nausea caused by the radiation. Lately I have had a hard time keeping my food down.  I am grateful to be getting TPN, as it helps keep my weight at its current value. I would, however, very much like to be able to eat and gain weight. I didn’t have much luck with breakfast today, but perhaps lunch and dinner will be better …
 

I was able to go on a nice, long walk with Cathy this morning. Even though I’m pretty fatigued, I’m able to do this one activity. Just goes to show you how important I view these walks for my overall health and well-being.
 

Despite the way I am feeling, I look forward to our Thanksgiving celebration. I always barbecue the turkey, and I plan to do so this year as well. I think Dan wants to help and learn how to do it.  I will welcome the assistance, but I’m not sure I want him or anyone else knowing just how easy it is!
 

I’m going to keep this short today. I don’t want to close, however, without first thanking you for your support. It is very much appreciated.


 

Laura Bacon September 17, 2013
 
Wishful Wednesday ...

Written November 21, 2012 11:58am
 

I feel a little bit better today than I did yesterday.  And I’m thankful for that. Cathy and I went on a nice walk this morning.  Those walks really are the highlight of my day.  They sure beat putting on my editor’s cap and working on manuscripts that have been submitted to the journal I edit. Indeed, I can’t think of anything I could do that would be as nice as a walk hand-in-hand with my best friend in perfect weather. Those walks are a nice time for us to visit and to connect more deeply with one another.
 

I was delighted to hear yesterday that I get both Thursday and Friday off from radiation therapy this week.  I need the break.  I am hopeful that it will enable me to feel better and to enjoy the holidays all that much more. As much as I enjoy having family around, I am always a little hesitant because I am not sure how I will feel.  I want to feel great (or at least good …) so that I can really enjoy their stay. But unfortunately I can’t guarantee how I will feel, from one day to the next. Fortunately, everyone in my family is fully aware of my situation and incredibly understanding.  All will be fine, even if all is not well.
 

My wish is that you all have a wonderful Thanksgiving holiday with friends and family. I hope you find time to reflect on the many blessings you have. Cathy and I are thankful for so much, and indeed this Thanksgiving is an especially good time for us to stop and reflect on things we are thankful for.  We are definitely thankful for the medical professionals who are taking care of me and for the wonderful friends and family who are supporting us through love, thoughts, and prayers. It has been a roller coaster ride over the past nine months or so. Our lives have been turned upside down. Right now we are experiencing a low point in our recovery, but I am confident that this too will pass and that we’ll climb to new heights in the near future. It is important that I think this way, that I have a positive attitude; it is the only thing I can control.
 

Please know that Cathy and I will be thinking of you this Thanksgiving holiday, and counting our blessings that you are in our lives and contributing so much to my recovery.
 

I will be taking a break from writing, but will write again next Monday. In the meantime, Cathy and I wish you all a Happy Thanksgiving!


 

Laura Bacon September 17, 2013
 
Back to the grind ...

Written November 26, 2012 12:50pm
 

I hope you had a wonderful Thanksgiving with family and friends.  Cathy and I certainly did.  As I mentioned in an earlier blog, we had our nephew (Andy) and his wife (Kate) here from Denver, as well as Dan, Liz, and Laura.  It is always nice when Laura stays with us instead of going back to her house at the end of the day … we don’t see her often enough, so it is a real treat when she stays.  Cathy was the consummate host.  She made a wonderful Thanksgiving meal (my only contribution was overseeing the turkey on the grill) and throughout the weekend made sure there were plenty of fun activities for everyone.  I was still tired from radiation, so needed to rest during the days.  Fortunately, I felt more or less fine otherwise.  I didn’t have much of an appetite, but I was able to eat small portions.  Not surprisingly, the Thanksgiving holiday went by way too fast.  I really hated to see everyone leave on Sunday.
 

The Thanksgiving holiday started out on a sad note, as Laura’s dog Che had died the day before.  He had a stroke last year on Thanksgiving, and had recovered pretty well from that.  Unfortunately, he had additional strokes about a week ago.  And although he seemed to be recovering somewhat, the strokes were just too much.  It was nice that Laura did not have to make the decision to have Che put down; he died naturally without being in lots of pain.  Dan helped Laura bury Che on Thanksgiving morning, near where I had buried our dog about a year ago.
 

I was particularly happy to have five days off from radiation therapy (the machine was down on Wednesday, and Thursday through Sunday were scheduled days off). I have 13 more days of radiation left (12 down, 13 to go). I’m not looking forward to them, as they really wipe me out. I’ll do my best to fight the nausea with various pills and the fatigue with naps. I should do pretty well at the beginning of this week; it gets more difficult as the week goes on, as the effects of the radiation are cumulative.
 

Although I don’t have an appetite, and thus I’m not eating all that much, I felt pretty strong on our walk this morning.  We went earlier than we have been lately, and unfortunately there was no sunshine in the streets where we normally walk.  Because it was a bit cool, we decided to move our walk into the wide open desert, where the sun was shining brightly.  It was great. Although Cathy noted that it is harder to hold hands while walking along the narrow paths in the desert, we managed nevertheless (I was highly motivated).  After we walked together for awhile, Cathy went on a run and I walked back home.
 

I am still being “fed” intravenously for 10 hours at night.  I think we will continue with that as long as I am receiving radiation therapy.  Although it requires some effort on our (especially Cathy’s) part, and then I’m tethered to a backpack overnight, it is not too bad and indeed it is good for me to be receiving all those calories and nutrients. The TPN keeps my weight up, which is really good.  I might even gain a pound or two while on it … it would be much easier to do that if I had an appetite!
 

I feel like we are starting a real push now in our recovery.  Once we get through the radiation therapy, we will move on to other treatments that I believe I’ll tolerate better. We are looking forward to getting some good news with regard to the tumor and the tumor marker.  It has been a while since we’ve had good news (any news, really).  We are fighting hard to get that good news. No one fights their battle against cancer alone. I feel as though you are helping me in my fight.  I greatly appreciate the support. I can’t thank you enough.


 


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